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- Charité - Universitaetsmedizin Berlin
- University of Luebeck
- Westfälische Wilhelms-Universität Muenster
- VU University Medical Center
- Radboud University Nijmegen Medical Center
- University of Birmingham, Centre for Endocrinology, Diabetes and Metabolism
- Assistance Publique – Hôpitaux de Paris
- Le Centre Hospitalier Universitaire de Toulouse
- Le Centre Hospitalier Universitaire Montpellier
- Université Claude Bernard Lyon 1, Hôpital Mère-Enfant de Lyon
- Ludwig-Maximilians-Universitaet, Munich
- Karolinska Institutet
- Medical University of Lodz
- Universitätsmedizin Goettingen
- GABO:milliarium
- Children’s Memorial Health Institute
- ARTTIC
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- Acronym dsd-LIFE
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Abstract: Terminology
Website dsdfamilies with Early days brochure - English