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  • About dsd-LIFE
    • Background
    • Concept and Objectives
    • Impact
  • The Group
    • Consortium
      • Charité - Universitaetsmedizin Berlin
      • University of Luebeck
      • Westfälische Wilhelms-Universität  Muenster
      • VU University Medical Center
      • Radboud University Nijmegen Medical Center
      • University of Birmingham, Centre for Endocrinology, Diabetes and Metabolism
      • Assistance Publique – Hôpitaux de Paris
      • Le Centre Hospitalier Universitaire de Toulouse
      • Le Centre Hospitalier Universitaire Montpellier
      • Université Claude Bernard Lyon 1, Hôpital Mère-Enfant de Lyon
      • Ludwig-Maximilians-Universitaet, Munich
      • Karolinska Institutet
      • Medical University of Lodz
      • Universitätsmedizin Goettingen
      • GABO:milliarium
      • Children’s Memorial Health Institute
      • ARTTIC
    • Scientific Advisory Board
  • The Project
    • WP01 - Preparation
    • WP02 - Recruitment and evaluation of patients
    • WP03 - Data analysis and publication
    • WP04 - Data management and statistical analysis
    • WP05 - Development of clinical guidelines and publication of results
    • WP06 - Dissemination and communication with the public
    • WP07 - Project Management
  • Information for parents
    • English
      • Clinical care of DSD
      • Information management
      • Boys or girls?
      • Importance of multidisciplinary work
      • Remember
    • Deutsch
      • Klinische Versorgung bei DSD
      • Umgang mit Informationen
      • Jungen oder Mädchen?
      • Warum ist ein multidisziplinäres Team (MDT) wichtig?
      • Zu Bedenkendes!
    • Français
      • Prise en charge des DSD
      • Comment gérer l’information?
      • Garçon ou fille?
      • Importance des équipes multidisciplinaires
      • Rappelez vous que
    • Nederlands
      • De behandeling van en begeleiding bij DSD
      • Wat te vertellen aan wie?
      • Jongen of meisje?
      • Het belang van andere zorg dan alleen medische zorg
      • Niet vergeten
    • Polska
      • Opieka medyczna nad pacjentami z ZRP
      • Przekazywanie informacji
      • Chłopcy czy dziewczynki?
      • Konieczność opieki wielospecjalistycznej
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    • English
      • Information about the study
      • Your study participation
      • Flyer and Contact information
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    • Français
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      • Dépliant et information au patient
    • Nederlands
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    • Polska
      • Informacje na temat badania
      • Uczestnictwo w badaniu
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    • Svenska
      • Information om studien
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  • Acronym dsd-LIFE
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Seventh Framework Programme

DSD-Life - The work leading to these results has received funding from the European Union Seventh Framework Programme (FP7/2007-2013) under grant agreement n° 305373.

 
 

Wat is AGS of bijnierhyperplasie?

www.nvacp.nl/page/Medisch/Aandoeningen/AGS/CAH/Adrenogenitaal-syndroom

www.radboudumc.nl/Zorg/Afdelingen/EndocrieneZiekten/DossierAGS/Pages/WatisAGS.aspx

www.nvacp.nl/page/Communicatie/Diversen?mod%5BNvacp_BlogModule%5D%5Bn%5D=35

‘Met AGS valt goed  te leven” 2011, te bestellen via: www.nvacp.nl

Results of the study

Abstract: Terminology

Body image and self esteem Final

CAH malesand testes Final

Description of the study Final

Fertility and patients views Final

Gender dysphoria and gender change Final

General health Final

Health care Final

Hormone therapies Final

lay abstract terminology Final

Quality of life Final

 

Consortium

Consortium

Quicklinks

The project Flyer

Flyer for participants

Early days brochure - Arabic

Early days brochure - Deutsch

Early days brochure - French

Early days brochure - Nederlands

Early days brochure - Polska

Early days brochure - Svenska

Early days brochure - Turkish

Early days brochure - Urdu

Website dsdfamilies with Early days brochure - English

DSD-Life brochure clinicians final English

DSD-Life brochure clinicians final Dutch

DSD-Life brochure clinicians final French

DSD-Life brochure clinicians final German

DSD-Life brochure clinicians final Polish

DSD-Life brochure clinicians final Swedish

dsd-LIFE Facebook

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